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Sailing Anarchists Affected by Cancer


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#3001 dacapo

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Posted 17 May 2012 - 12:53 AM

SiL goes tomorrow for mastectomy. Still, all signs positive.

I received my own special, personalised invitation to the C-Club today. Melanoma in-situ. The most benign of all malignant possibilities. Caught early, it means I lose a chunk of skin, I get plastic surgery, and I get to see my Dermatologist 4x/year. Somehow I expected this when she took a sample for biopsy on Monday. Consultation with the surgeon on 4th June. Feels like a long time to wait. I hate waiting. Mood is fine, though.



it seems as if waiting can be the hardest part....

Thoughts to all for a quick recovery...

#3002 Bowgirl

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Posted 17 May 2012 - 01:43 AM

it seems as if waiting can be the hardest part....

Thoughts to all for a quick recovery...


Thanks dacapo. I"m not known as a terribly patient person (!) LOL But I'm more preoccupied with my SiL than with my little blip. Big day for her tomorrow. We joked, tonight, about me not being content for her to have her moment in the limelight, that I had to have a little "episode" of my own to steal some of the attention. Great to laugh with her. She's absolutely amazing.

All spare prayers in Joyce's direction Thursday morning, please. The most awesomest in-law a person could wish for.

#3003 Sol Rosenberg

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Posted 17 May 2012 - 03:32 AM


SiL goes tomorrow for mastectomy. Still, all signs positive.

I received my own special, personalised invitation to the C-Club today. Melanoma in-situ. The most benign of all malignant possibilities. Caught early, it means I lose a chunk of skin, I get plastic surgery, and I get to see my Dermatologist 4x/year. Somehow I expected this when she took a sample for biopsy on Monday. Consultation with the surgeon on 4th June. Feels like a long time to wait. I hate waiting. Mood is fine, though.



it seems as if waiting can be the hardest part....

Thoughts to all for a quick recovery...

My sentiments exactly. Hang in there. What the hell is going on with all of this stuff?

#3004 Don'tCallMeJudge

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Posted 17 May 2012 - 05:35 AM


it seems as if waiting can be the hardest part....

Thoughts to all for a quick recovery...


Thanks dacapo. I"m not known as a terribly patient person (!) LOL But I'm more preoccupied with my SiL than with my little blip. Big day for her tomorrow. We joked, tonight, about me not being content for her to have her moment in the limelight, that I had to have a little "episode" of my own to steal some of the attention. Great to laugh with her. She's absolutely amazing.

All spare prayers in Joyce's direction Thursday morning, please. The most awesomest in-law a person could wish for.



Positive vibes and big hugs to Joyce. And to you, darlin'
:)

#3005 isma

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Posted 17 May 2012 - 05:41 AM


it seems as if waiting can be the hardest part....

Thoughts to all for a quick recovery...


Thanks dacapo. I"m not known as a terribly patient person (!) LOL But I'm more preoccupied with my SiL than with my little blip. Big day for her tomorrow. We joked, tonight, about me not being content for her to have her moment in the limelight, that I had to have a little "episode" of my own to steal some of the attention. Great to laugh with her. She's absolutely amazing.

All spare prayers in Joyce's direction Thursday morning, please. The most awesomest in-law a person could wish for.

I've been through this a few times sans plastic surgeon (everything on my back). You have exactly the right perspective and my best thoughts and prayers are with your SIL. Hopefully, and I expect not, you never experience the limelight.

#3006 RockHead

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Posted 17 May 2012 - 11:24 AM

Just heard that my cousin Kara, 21 year breast cancer survivor relapsed. Had mastectomy on Tuesday. It never fucking ends, and I'm getting weary of it.

Long duration relapse, and secondary cancers are what scare me most for my son in the long term. That, plus the long-term side effects, and other kids picking on him for his small size, lack of speed, and innocence.

Having a period of weakness and weariness from all this cancer crap and other miserable life stuff. Sailing this afternoon, I'll get over it.

#3007 Bowgirl

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Posted 17 May 2012 - 01:13 PM

Sending hugs your way, Rockhead. Sailing sounds like good therapy.

I called the surgeon's office and got re-scheduled to tomorrow afternoon for the consultation. That makes me feel more comfortable.

#3008 NautiGirl

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Posted 17 May 2012 - 03:38 PM

Good to hear you got your appointment moved up, bowgirl. I can relate to your impatience when it comes to waiting for stuff like that.

Sending positive thoughts and good vibes in Joyce's direction.

#3009 mainsheetsister

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Posted 17 May 2012 - 09:59 PM

Sending hugs your way, Rockhead. Sailing sounds like good therapy.

I called the surgeon's office and got re-scheduled to tomorrow afternoon for the consultation. That makes me feel more comfortable.



Thinking of you and your family, Carina. Love you.

#3010 Bowgirl

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Posted 17 May 2012 - 10:15 PM


Sending hugs your way, Rockhead. Sailing sounds like good therapy.

I called the surgeon's office and got re-scheduled to tomorrow afternoon for the consultation. That makes me feel more comfortable.



Thinking of you and your family, Carina. Love you.

Bless you for having the courage to venture in here again so soon MSS. I love you, too. All shall be well.

Joyce's news is good. Surgery over, she's awake and has moved about some. Amazing woman.

#3011 Geff

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Posted 17 May 2012 - 11:09 PM

That's great news. Keeping a good thought for all involved. Close friend's mom just got diagnosed with Pancreatic cancer. It's what got my Mom in 1993. Hate that one! Posted Image

#3012 behappy

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Posted 18 May 2012 - 12:22 AM

Just heard that my cousin Kara, 21 year breast cancer survivor relapsed. Had mastectomy on Tuesday. It never fucking ends, and I'm getting weary of it.

Long duration relapse, and secondary cancers are what scare me most for my son in the long term. That, plus the long-term side effects, and other kids picking on him for his small size, lack of speed, and innocence.

Having a period of weakness and weariness from all this cancer crap and other miserable life stuff. Sailing this afternoon, I'll get over it.


Relapse scares me the most. It also makes check-ups anxious times, and I have one Monday. I don't know what I would do if I was faced with going through that washing machine again. Sailing is great therapy!

#3013 mainsheetsister

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Posted 18 May 2012 - 01:16 AM



Sending hugs your way, Rockhead. Sailing sounds like good therapy.

I called the surgeon's office and got re-scheduled to tomorrow afternoon for the consultation. That makes me feel more comfortable.



Thinking of you and your family, Carina. Love you.

Bless you for having the courage to venture in here again so soon MSS. I love you, too. All shall be well.

Joyce's news is good. Surgery over, she's awake and has moved about some. Amazing woman.


Glad your wait will not be so long, and that Joyce is doing well.

I don't really know most of you, but most of you seem to know me, which, honestly is a very strange place to be. And as far as venturing in here, it is not hard to guess that I simply cannot go back and read much of anything from the past, even though I've been told that someday I might want to.

I knew in September that this was going to be difficult, but I way underestimated how difficult it would be. And I foolishly thought that by now, it would start getting easier, but it's just not.

#3014 Boomberries

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Posted 18 May 2012 - 01:16 AM

Hugs and best thoughts to you Bowgirl, and to Joyce. Wishing her a speedy recovery, and I hope you have a minimal of procedures and peace of mind soon.

#3015 riggert

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Posted 18 May 2012 - 05:38 AM


Just heard that my cousin Kara, 21 year breast cancer survivor relapsed. Had mastectomy on Tuesday. It never fucking ends, and I'm getting weary of it.

Long duration relapse, and secondary cancers are what scare me most for my son in the long term. That, plus the long-term side effects, and other kids picking on him for his small size, lack of speed, and innocence.

Having a period of weakness and weariness from all this cancer crap and other miserable life stuff. Sailing this afternoon, I'll get over it.


Relapse scares me the most. It also makes check-ups anxious times, and I have one Monday. I don't know what I would do if I was faced with going through that washing machine again. Sailing is great therapy!



Me too. I expessed my worries to my GP the other day. Was told that if I felt low and was worried I could come in for an additional test anytime - I'm lucky my GP used to work in a hospital treating people with various cancers so knows the fears we face.


Best wishes to All

#3016 redboat

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Posted 18 May 2012 - 10:30 AM

Having a period of weakness and weariness from all this cancer crap and other miserable life stuff. Sailing this afternoon, I'll get over it.



I'm ashamed to say I've deliberately avoided this thread for a while simply because it was too difficult, particularly following MSG's travails.

As you say, weariness from dealing with everything can be overwhelming at times.

Rockhead, I truly admire your strength and the support you regularly and so generously offer to those who tread here and I guess all I can offer are the wishes for many great sails and positive resolutions to the damn complications that confront you.

The old Karma Wheel is due to sprinkle some good stuff your way.

Hang in there mate. I'm sure you will.

#3017 TimFordi550#87

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Posted 18 May 2012 - 02:33 PM

Rockhead, I truly admire your strength and the support you regularly and so generously offer to those who tread here


Same here. Hope to shake the Rockhead's hand one day!
--tf

#3018 RockHead

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Posted 18 May 2012 - 04:23 PM

Thank you all, I appreciate your words of encouragement. I'm rather flattered, in fact. Feeling better and more upbeat today.

I had an incredibly productive and inspired work day yesterday, which helped. Then went and raced Painboxes (J/24s) with Fleet 50 in Newport last night. 4 hours travel time for 2 hours racing. 19 boats, went 4-12(?)-8 our first week there. Team learned a ton (including the importance of the final race, to the hoist!), worth the drive. That helped too.

MSS, I'm sure it can't be easy. But when you're ready, there's an incredible gift waiting for you when you go back and read this thread from the beginning. Catherine was a steady beacon of love and support for all who come here. The frenzy that ensued on this thread with her diagnosis was a reflection of all that she gave in all of her life. That part might be harder to get through. It feels a bit very odd to say this, but I'm glad it's quieted down here again. I go back and read this thread from the beginning a couple of times a year. It's inspiring and humbling.

Geff, pancreatic sucks, I'm sorry. Took my best friend years after he beat testicular. I have a particular hate for that one.

Bowgirl, Glad you got your appointment pushed up. I'd just want to get that stuff out, ASAP.

Redd, I've done the same, avoiding this thread at times. I think that's okay. Sometimes we just don't have the wherewithal to jump in here. The beautiful thing is, there is always someone here who does. Posted Image

#3019 redboat

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Posted 18 May 2012 - 06:02 PM

And Bowgirl, as I mentioned in my above post, I've deliberately avoided this thread for a bit but was also concerned about your latest news. Be strong, stand tall and confront this hateful malady. I'm more than certain you shall emerge victorious. Now go sailing, our universal tonic, and smile.

#3020 Bowgirl

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Posted 19 May 2012 - 02:08 AM

Spoke with SiL today. She's moving a little, in some pain, but cracking jokes and laughing. Small efforts exhaust her, to be expected, but all signs and results are good news so the road to recovery begins with huge sighs of relief.

I saw my surgeon today. By noon Tuesday my melanoma will be gone and I'll be mending too.

Thanks, everyone, for continuing healing thoughts for Joyce, and for being there for me.

#3021 mainsheetsister

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Posted 19 May 2012 - 02:19 AM

Thank you all, I appreciate your words of encouragement. I'm rather flattered, in fact. Feeling better and more upbeat today.

I had an incredibly productive and inspired work day yesterday, which helped. Then went and raced Painboxes (J/24s) with Fleet 50 in Newport last night. 4 hours travel time for 2 hours racing. 19 boats, went 4-12(?)-8 our first week there. Team learned a ton (including the importance of the final race, to the hoist!), worth the drive. That helped too.

MSS, I'm sure it can't be easy. But when you're ready, there's an incredible gift waiting for you when you go back and read this thread from the beginning. Catherine was a steady beacon of love and support for all who come here. The frenzy that ensued on this thread with her diagnosis was a reflection of all that she gave in all of her life. That part might be harder to get through. It feels a bit very odd to say this, but I'm glad it's quieted down here again. I go back and read this thread from the beginning a couple of times a year. It's inspiring and humbling.

Geff, pancreatic sucks, I'm sorry. Took my best friend years after he beat testicular. I have a particular hate for that one.

Bowgirl, Glad you got your appointment pushed up. I'd just want to get that stuff out, ASAP.

Redd, I've done the same, avoiding this thread at times. I think that's okay. Sometimes we just don't have the wherewithal to jump in here. The beautiful thing is, there is always someone here who does. Posted Image


thanks. just knowing that she's here is all that i can cope with right now.

me actually reading will maybe happen someday.

this disease is a scourge, but what is here because of it is a thing of beauty indeed.

#3022 Ozee Adventure

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Posted 19 May 2012 - 06:45 AM

I'm in & out lurking thesedays but the kettle is on & I'm awake when the 'mericans are alseep
:)

#3023 tuf-luf

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Posted 19 May 2012 - 02:30 PM

Pour me a cuppa too Ozee ;)

#3024 Bowgirl

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Posted 22 May 2012 - 06:11 PM

Done.
Excision complete, neatly stitched up, and good to go with a couple of Tylenol when the freezing wears off.
How I wish cancer could be this 'easy' for everyone.


Tea? I'll pour ^_^

#3025 F-18 5150

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Posted 22 May 2012 - 06:13 PM

Done.
Excision complete, neatly stitched up, and good to go with a couple of Tylenol when the freezing wears off.
How I wish cancer could be this 'easy' for everyone.


Tea? I'll pour ^_^


Great news BowGirl
hope all goes well with the recovery

#3026 Mario

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Posted 22 May 2012 - 08:05 PM

Done.
Excision complete, neatly stitched up, and good to go with a couple of Tylenol when the freezing wears off.
How I wish cancer could be this 'easy' for everyone.


Tea? I'll pour ^_^


I have a cup, with honey Please. Is nice to read good news here, some times.

namaste!

#3027 Don'tCallMeJudge

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Posted 22 May 2012 - 08:46 PM

Done.
Excision complete, neatly stitched up, and good to go with a couple of Tylenol when the freezing wears off.
How I wish cancer could be this 'easy' for everyone.


Tea? I'll pour ^_^



I just happen to have a couple of spare hugs around here, so I'm sending them your way.
Just because.

I can relate to your comment about the ease (or lack thereof) for some cancer cases vs. others. I felt that guilt myself, since my case was a bit unusual. I didn't even know I had a problem until I started bleeding (GI), and spent four days in the ICU. The waiting in intensive care included a half dozen various major and minor procedures, along with and 7 or 8 transfusions before the GIST tumor was finally found. I only had 8 hours of "knowledge" of cancer between tumor discovery and surgical resection. GIST is rare enough that only about 5000 cases a year show up in the US, and it happens to be a cancer that simply can't be treated with radiation or chemo, so surgery was the only option, and I managed to be asleep through that fun part. ;)

I went on a powerful daily drug called Gleevec as adjunct therapy after surgery, and while it did have some significant side effects, they were pretty tame in my case compared to many who deal with both the direct effects- and side effects of cancer. I was more scared of the cancer than MS, but Multiple Sclerosis was affecting my everyday life in a bigger way (my MS diagnosis was just 5 months before my cancer diagnosis), so I suppose it allowed me to use a bit of denial and avoid focusing on cancer too much. ;)


~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

This thread was indeed (as RockHead noted) representative of a community within SA that Catherine was a member of, long before she found herself facing the beast head on. It made it even harder for many of us to "participate" to some degree, because she was already so much a part of this "family" and so many already had the pleasure of knowing her in person in the real world outside of the SA web site. When it hits close to home for an active and/or long-time member on the site, it hits hard, but for the hundreds of others who are newer or less well "known" on SA , the pain and fear and struggles and challenges are just as big, just as real, and just as deserving of our support.

When Shaun started this thread, one of his primary stated goals was to offer support and strength for everyone who battles cancer... or any other significant health or life challenge. I always get a lump in my throat when I see this thread bumped to the top of Page 1, and the way I handle the fear of looking to see the latest news, is to remember how much strength I've gotten personally from many of you, and to remember that we are all stronger together than on our own. Like RH, I find strength and love here, and I too invest the time to start at the very beginning with Shaun's first post every 6 or 9 months and read it all the way through again. I cry a fair amount, but I also smile.

Cheers to all**
Blake

#3028 Amati

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Posted 22 May 2012 - 09:45 PM

Done.
Excision complete, neatly stitched up, and good to go with a couple of Tylenol when the freezing wears off.
How I wish cancer could be this 'easy' for everyone.


Tea? I'll pour ^_^


Be glad.

It's nice when it works, but you do have to have the nerve to find out about this stuff and get it taken care of.

Kudos

#3029 mainsheetsister

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Posted 03 June 2012 - 02:50 AM

There's a comfort in this thread. A reminder that no one is alone, that life is still beautiful and that we all go on to our next adventure. We're all part of the great circle of life. No one's life is any greater or any less than any other. Remember to tell those you love that you love them, to take things one day or sometimes just one hour at a time, that there is strength and courage in numbers and that we all get a lifetime here.

Make it nice. Make it count. Remember to smile, it makes the world a better place.

To those fighting cancer and to those whose loved ones are touched by it, may we all continue to thrive and survive.

Peace.


I love you, Catherine, and I miss you.

#3030 Boats13

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Posted 03 June 2012 - 06:27 AM

Bump, just because... I keep reading... I keep hoping I will be able to write about my second hand experience with cancer as a caretaker... setting a goal of Wednesday this week. MSS, look up Catherine's input on the Go the Wendy thread, if you get time or the inclination. Any updates from anyone on here??

#3031 mainsheetsister

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Posted 03 June 2012 - 04:55 PM

Bump, just because... I keep reading... I keep hoping I will be able to write about my second hand experience with cancer as a caretaker... setting a goal of Wednesday this week. MSS, look up Catherine's input on the Go the Wendy thread, if you get time or the inclination. Any updates from anyone on here??


Not sure that I'm ready just yet, still working my way though this one...still, I don't always catch my breath when I see my sister here the way that I did just a few weeks ago. Sometimes, anyway.

Where should I look for it?

Be well, Boats13....looking forward to reading about your cancer caretaker experience when you are able to write about it. That's a tough thing, too.

#3032 DoRag

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Posted 03 June 2012 - 07:36 PM


There's a comfort in this thread. A reminder that no one is alone, that life is still beautiful and that we all go on to our next adventure. We're all part of the great circle of life. No one's life is any greater or any less than any other. Remember to tell those you love that you love them, to take things one day or sometimes just one hour at a time, that there is strength and courage in numbers and that we all get a lifetime here.

Make it nice. Make it count. Remember to smile, it makes the world a better place.

To those fighting cancer and to those whose loved ones are touched by it, may we all continue to thrive and survive.

Peace.


I love you, Catherine, and I miss you.


We all miss MSG!

#3033 glorydaze443

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Posted 03 June 2012 - 08:33 PM

Every timee I click this thread, my eyes get a little watery and I hug my family. Then I think about the one day in my life that I was lucky enough to spend a little bit ot time around Catherine, and I feel blessed.

#3034 TimFordi550#87

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Posted 04 June 2012 - 12:22 AM

Well said, Blake.

#3035 Bowgirl

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Posted 04 June 2012 - 01:55 AM

Bump, just because... I keep reading... I keep hoping I will be able to write about my second hand experience with cancer as a caretaker... setting a goal of Wednesday this week. MSS, look up Catherine's input on the Go the Wendy thread, if you get time or the inclination. Any updates from anyone on here??


Just back from visiting my brother & family for my niece's high school graduation. SiL is doing fantastically. Her drain comes out tomorrow, swelling is much decreased, sense of humour completely in tact.

We enjoyed a belly-laugh about a T-shirt she'd heard about. A woman who has had a double-mastectomy and reconstruction, proudly sports a T-shirt that says "Yes, they're fake. The originals tried to kill me!"

Laughter ... the best medicine

#3036 Boats13

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Posted 04 June 2012 - 03:00 AM


Bump, just because... I keep reading... I keep hoping I will be able to write about my second hand experience with cancer as a caretaker... setting a goal of Wednesday this week. MSS, look up Catherine's input on the Go the Wendy thread, if you get time or the inclination. Any updates from anyone on here??


Just back from visiting my brother & family for my niece's high school graduation. SiL is doing fantastically. Her drain comes out tomorrow, swelling is much decreased, sense of humour completely in tact.

We enjoyed a belly-laugh about a T-shirt she'd heard about. A woman who has had a double-mastectomy and reconstruction, proudly sports a T-shirt that says "Yes, they're fake. The originals tried to kill me!"

Laughter ... the best medicine



You owe me a keyboard, and a bath for the cat sitting at my feet with Iced Tea all over him...

#3037 Bowgirl

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Posted 04 June 2012 - 06:36 PM

You owe me a keyboard, and a bath for the cat sitting at my feet with Iced Tea all over him...


Where's the little angelic face emoticon?!

Just shared that with a friend who's working late in Nairobi, and who just had security pop in to check why she was laughing like that while all alone in the office.... Nothing beats a good laugh. :lol:

#3038 Sol Rosenberg

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Posted 04 June 2012 - 06:53 PM



There's a comfort in this thread. A reminder that no one is alone, that life is still beautiful and that we all go on to our next adventure. We're all part of the great circle of life. No one's life is any greater or any less than any other. Remember to tell those you love that you love them, to take things one day or sometimes just one hour at a time, that there is strength and courage in numbers and that we all get a lifetime here.

Make it nice. Make it count. Remember to smile, it makes the world a better place.

To those fighting cancer and to those whose loved ones are touched by it, may we all continue to thrive and survive.

Peace.


I love you, Catherine, and I miss you.


We all miss MSG!

yes

#3039 Madge

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Posted 04 June 2012 - 09:25 PM


Bump, just because... I keep reading... I keep hoping I will be able to write about my second hand experience with cancer as a caretaker... setting a goal of Wednesday this week. MSS, look up Catherine's input on the Go the Wendy thread, if you get time or the inclination. Any updates from anyone on here??


Just back from visiting my brother & family for my niece's high school graduation. SiL is doing fantastically. Her drain comes out tomorrow, swelling is much decreased, sense of humour completely in tact.

We enjoyed a belly-laugh about a T-shirt she'd heard about. A woman who has had a double-mastectomy and reconstruction, proudly sports a T-shirt that says "Yes, they're fake. The originals tried to kill me!"

Laughter ... the best medicine


I saw a woman wearing this T-shirt at this past weekend's Bayview One Design Regatta. Perfect!

M.

#3040 Boats13

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Posted 05 June 2012 - 05:43 AM


You owe me a keyboard, and a bath for the cat sitting at my feet with Iced Tea all over him...


Where's the little angelic face emoticon?!

Just shared that with a friend who's working late in Nairobi, and who just had security pop in to check why she was laughing like that while all alone in the office.... Nothing beats a good laugh. :lol:



I've not been accused of any angelic qualities.... heinous anus... but, nothing nice...;)

#3041 Heaven can wait

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Posted 06 June 2012 - 11:02 AM

Sorry folks for being somewhat quiet since we lost our beloved MSG, she will always remain in my heart as someone who never stopped believing in all of us Anarchists but moreso especially believing in me.

Following the loss of MSG, my own life has taken somewhat of a left hand turn "again" which came to a crashing holt on Monday when following a somewhat weird Weekend physically, I called in on my Mum to check out my blood sugars.

"Hi" is all that the little device displayed.

Initially I laughed thinking that "Hi" mean't Hello, however on checking the instructions "Hi" referred to "Off the Charts" which wiped the smile straight off my face.

I'd felt fuzzie for a few days prior however I was rich in a slurred tone by the time I'd reached Mum's. No debate was entered into and an Ambulance was called.

After letting countless vials of blood my diagnosis was confirmed "Diabeties".

BUGGER.

#3042 LarryE

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Posted 06 June 2012 - 11:42 AM

Doesn't have to be the end.
Have a family member that when he was checked, reading was 556!!
Went on insulin for 2 months and with very low carb diet was able to go off the juice. Been insulin free for over a year and checks sugars every week. Always in the 80-90 range, which is great!
Good luck.

#3043 Bowgirl

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Posted 06 June 2012 - 03:02 PM

Hang in there HcW.
At least Diabetes is something within your control (once you get it under control).

Hoping you are back to 'normal' soon.

#3044 us772

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Posted 01 July 2012 - 05:20 PM

Took my last injection and pills on Friday night. My drug therapy is over as per plan. Hopefully this nightmare is over. I get retested in 6 months for hep c viral load.
It will take a while for the drugs to leave my body. I went sailing with a buddy on Saturday morning anyway in light air on his multi hull. It's nice to be on the water again.
John







Update - I'm over the hump finally. 10 more weeks of therapy. At week 12 of 24 weeks The dr took me off one of the triple treatment drugs (Incivik). as per treatment plan. Later I was tested for liver function thyroid,cbc and viral load.The liver function and thyroid tests were ok My white and red counts are low. Mt hemoglobin is also low. The key test was the hepc viral load. It's still undetected in my body meaning the therapy is working. I'm still very tired from being anemic and pay for it if I over do it usually with a bad headache for hours at night due to lack of oxygen in the brain. I still have a bad cough too. The good news is I haven't thrown up for 3 weeks and am eating normal food again. The rash and a few other side effects have left too from the Incivik. Tonight is injection night so I will feel like crap for a few days.
I got requests to build 5 sets of rib kits for the one design solid wingboat that I designed. I've felt well enough to work an hour or two per day to make up the kits. Even tough it's only an hour or two I feel productive again. Good for me psychologically. It's nice to see the wingboat class grow too!
My thoughts and prayers go out to those who are sick or suffering on this thread.
John Eisenlohr







I've always avoided reading this thread on purpose. I started reading today and felt differently in a good way . It's inspirational. I thought it might feel good to purge myself of what I'm going through. My world has changed now over the last 6 weeks. I don't have cancer but it's a serious situation. I'm 1/4 of the way done with a new drug therapy to cure my hepc virus. I was born with a birth defect in my heart and had a successful cutting edge open heart surgery when I was 4 years old. Before the operation I was not expected to live passed 16. Jump forward 40 some odd years. I was dealing with a blown disk in my lower back for 5 pain filled years and I elect for a spinal fusion after I couldn't take the pain any more. I find out before surgery I test positive for hepc virus. The virus is probably a result of the open heart surgery blood transfusions when I was 4 years old. The Dr said my body had fought the virus pretty well for that many years on its own. It usually takes half that time to cause serious health issues. Left untreated hepc eventually will lead to liver failure or cancer. when I found out I had the hepc 3 years ago my treatment options were bleak. 48 months of treatment with about a 30% chance of cure rate with my genotype. My Doctor told me to wait for a better treatment to come around. I waited and found one that the FDA released in the US last year. We set it up to start in January of this year due to insurance deductibles etc. After 3 weeks figuring out the insurance bs I finally got started. The first 3 weeks were tolerable. Week 4 my blood counts dumped off. I am self employed and had to pull the plug on my business because I can't physically work no less remember much any more (brain fog). The sx from the drugs are super powerful. I take about 15 or 20 pills a day. Half of them are just to counter react the sx of the 3 main drugs. About $6500 to $7000 per week for the first 12 weeks and about a 1/3 of that for another 12 weeks. Glad I have insurance! I have about 16 different side effects from the drugs. The hardest one for me is the nausea and keeping from throwing up. It's imperative for me not to throw up my doses because the virus can mutate if they are not present. I only have one shot at this therapy. They will not do it again because the virus will mutate and become immune. All of this leads to anxiety some some days are really tough. By the grace of God I've only lost 2 doses in 6 weeks. It's kind of mind over matter at times. The other main problem is my bodies lack of heat regulation. I'm either shivering or burning up. When I burn up I get heat rash and my body itches all over followed up with a 4 or 5 hour migraine. The good news is these bouts do pass with time and you do get a reprieve. The sx cycles as I inject my interferon. I inject on Friday so I may 2 or 3 days of hell pay for it.
The good news is I had my viral loads tested at week 4. The drugs are working I started at a vl 800,000 now I'm at 7 or what they call undetectable. I noticed my liver pain is about gone too. . This week I have been experimenting with ginger tea for the nausea. So far It's helped a lot. Everything is day to day. Through all this I feel truly blessed to have good family and friends help me out. I've spent more time with my wife and have gotten to know her on a deeper level. On a spiritual level I've got to reflect back on my life. I have survived heart surgery a mysterious 3 year illness in the 90's back fusion and hip replacement all within 3 months. God has been faithful to me I think he wants me around a little longer. That news keeps me motivated to carry on another 18 weeks.
Thanks for letting me vent.
John



#3045 F-18 5150

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Posted 07 July 2012 - 04:30 PM

You are not forgotten, Happy Birthday Catherine.
On what would have been her 43rd birthday I would like to say I miss you MSG.

#3046 Don'tCallMeJudge

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Posted 08 July 2012 - 05:20 PM

You are not forgotten, Happy Birthday Catherine.
On what would have been her 43rd birthday I would like to say I miss you MSG.


+43

#3047 RockHead

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Posted 08 July 2012 - 07:22 PM

Sorry folks for being somewhat quiet since we lost our beloved MSG, she will always remain in my heart as someone who never stopped believing in all of us Anarchists but moreso especially believing in me.

Following the loss of MSG, my own life has taken somewhat of a left hand turn "again" which came to a crashing holt on Monday when following a somewhat weird Weekend physically, I called in on my Mum to check out my blood sugars.

"Hi" is all that the little device displayed.

Initially I laughed thinking that "Hi" mean't Hello, however on checking the instructions "Hi" referred to "Off the Charts" which wiped the smile straight off my face.

I'd felt fuzzie for a few days prior however I was rich in a slurred tone by the time I'd reached Mum's. No debate was entered into and an Ambulance was called.

After letting countless vials of blood my diagnosis was confirmed "Diabeties".

BUGGER.

Ah, Shaun, what's one more thing? Posted Image

Hang in there mate, you've been through worse.

Has Catherine's sister been in touch with you directly? You, Blake, Carina and a few others should certainly be part of one of Catherine's final wishes. PM MainsheetSister. You'll be glad you did...





#3048 Don'tCallMeJudge

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Posted 09 July 2012 - 01:34 AM


Sorry folks for being somewhat quiet since we lost our beloved MSG, she will always remain in my heart as someone who never stopped believing in all of us Anarchists but moreso especially believing in me.

Following the loss of MSG, my own life has taken somewhat of a left hand turn "again" which came to a crashing holt on Monday when following a somewhat weird Weekend physically, I called in on my Mum to check out my blood sugars.

"Hi" is all that the little device displayed.

Initially I laughed thinking that "Hi" mean't Hello, however on checking the instructions "Hi" referred to "Off the Charts" which wiped the smile straight off my face.

I'd felt fuzzie for a few days prior however I was rich in a slurred tone by the time I'd reached Mum's. No debate was entered into and an Ambulance was called.

After letting countless vials of blood my diagnosis was confirmed "Diabeties".

BUGGER.

Ah, Shaun, what's one more thing? Posted Image

Hang in there mate, you've been through worse.

Has Catherine's sister been in touch with you directly? You, Blake, Carina and a few others should certainly be part of one of Catherine's final wishes. PM MainsheetSister. You'll be glad you did...


I'm in to help "take" a bit of Catherine to Oz for the HCW. She told me that she wanted to go, so it shall be.
Blake

#3049 Bowgirl

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Posted 09 July 2012 - 01:55 AM

Took my last injection and pills on Friday night. My drug therapy is over as per plan. Hopefully this nightmare is over. I get retested in 6 months for hep c viral load.
It will take a while for the drugs to leave my body. I went sailing with a buddy on Saturday morning anyway in light air on his multi hull. It's nice to be on the water again.
John


Take the good news as it comes. Congrats on getting through this far, and best celebration is water-time :)

#3050 F-18 5150

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Posted 09 July 2012 - 09:18 PM

Posted Image

#3051 V-15_Frenchie

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Posted 25 July 2012 - 11:00 PM

I found out last September that Uncle Frenchie has Stage IV ascending colon cancer. He's in his mid-70s, "Silent Generation" type guy -- never said anything, never complained, would never show pain, so he found out about it really late. The "clue" was that he had lost a bunch of weight and lost his appetite. Never really felt pain.

Given that he lives ~4000 mi away, I dropped by to visit while I was there in December, and he seemed to be doing well and seemed to be tolerating the chemo fairly well. He had lost a significant amount of weight (~20kg or so), but he was OK. I dropped by again last time I was there in late May, and he had lost more weight, wasn't eating much and was in pain. He and my aunt were packing up their house, giving / throwing away a bunch of their belongings, to move closer to my cousin halfway across the country. They weren't particularly keen to have visitors, but my wife and I went anyway. We stayed for an hour and a half, just for tea and some cookies. It didn't look like he could handle much more. I gave him a big hug on my way out the door, and I felt like I was hugging a bunch of bones instead of the strong guy I used to know. I lost it in the car as my wife & I drove off to see some of her family, enough so that she asked if I didn't want to stop for a while. It took a while to get it back together.

Mom Frenchie (aunt's sister) went to visit the other day, and it's starting to sound like May was the last opportunity I'll have to see him alive. He had just had his latest round of chemo, and had a major onset of pain and was rushed to the hospital. He was doing as best as could be expected for a few days, but just today nurses have apparently closed off most of the access to his hospital room and his immune system has crashed - no more WBCs, no more platelets. For a guy who never complained about pain, he's on heavy doses of morphine right now, and it sounds like that's barely helping. He's telling everyone that he's looking forward to getting out of the hospital by this weekend and is looking forward to the next round of chemo in a week or so, but it sounds like the end is near. He's lucid sometimes, but less and less so. I don't think he realizes what's happening. Or he doesn't want to admit it to himself or to others. But it seems like the end is near. This sucks. We're a really small family, so aside from my father, he was the only other male presence in my life. (And on the father front, he's been dealing with prostate cancer, doing "watchful waiting" for the last ~12 months....). This sucks. And I'm 4000mi away as this is all happening.

It's dusty in here.

#3052 mainsheetsister

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Posted 26 July 2012 - 03:45 AM

Cancer is an evil thief. I'm really sorry about your uncle. Thinking of you.

#3053 Bowgirl

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Posted 26 July 2012 - 03:45 PM

Thoughts are with the Frenchie family.

Everything that's going through my mind as I sit here and ponder your situation sounds like trite platitudes.

<<hugs>>

#3054 shaggybaxter

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Posted 30 July 2012 - 11:04 AM

I just thought I'd post and share my story. My father passed away on Wednesday after a pretty intense 9 months fighting cancer, first of the esophagus and then the liver. Never smoked, drank, and hardly even swore, you would be hard up to meet a more dignified, unselfish man than he (yep I'm biased). I had thankfully seen him only the night before. We knew by then it was nearing the end, we had moved him into pallative care and he was pretty much on morphine only by then to keep him comfortable.
Mum had rang to tell us the day before it was getting close, and said there wasn't much point in seeing him. I was driving home from work when I rang my wife to tell her the news, and she suggested I go and see him if I felt like it. I wasn't sure what to do, but something made me turn around and go to the hospital.
When I arrived I understood why Mum had said what she did, he was lying in bed twisted up, head to one side and arched back, his hands like claws. He wasn't really responsive, but his eyes were half open. I sat and held his hands, stroked his hair and talked to him for 3/4 hour. We weren't really an emotional family, but I sat and told him how much I loved him, how much I appreciated and understood how much he had sacrificed for his kids, and how regardless of the successes i have had, and the successes I have yet to accomplish, the proudest moments in my life was when someone had said, "that Mike's son, he is just like his father"
I left somehow both immensely sad and yet at peace. He passed away the next morning at 4.15am.
He was an avid sailor, and a gentleman of the old school, as long as he could, he was still helping out with Sailability, an organisation asisting people with disabilities to sail. I promised him I would sail past one of the islands he knew well, where the water is crystal clear, and where when you pop out between the islands you ease sheets and point North and let the boat sail herself. I would then raise a toast to my best friend, and know he will be looking down and smiling in pleasure, for once a sailor always a sailor, in this life and the next.
Stand tall Dad, I am proud to be your son and I will miss you mate. Rest easy now, your work is done, it is our cudgel to take up now, and somehow I do it knowing I am not alone.
I love you.
Greg




#3055 NautiGirl

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Posted 30 July 2012 - 11:10 AM

Sorry for your loss sb. What a beautiful tribute.

#3056 mainsheetsister

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Posted 30 July 2012 - 11:20 AM

So sorry about your dad. Couldn't get through your post without weeping. Much love to you and your family.

#3057 Bowgirl

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Posted 30 July 2012 - 11:30 AM

What a wonderful tribute. How lucky you were to have that last special evening with him, to say what you needed to say.
Condolences to your family on your loss.

#3058 TimFordi550#87

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Posted 30 July 2012 - 04:32 PM

I wasn't sure what to do, but something made me turn around and go to the hospital.

Speaking as someone who missed that opportunity, way to go mate. Sure wish I had. That was 25 yrs ago and I still have a lingering sense of regret.
Terrific tribute, my sincere condolences.

#3059 Geff

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Posted 30 July 2012 - 06:55 PM

I wasn't sure what to do, but something made me turn around and go to the hospital.



I ended up doing a similar thing except it was with my Mom coming up on 19 years ago. Though she was one who would never let someone or something be left with regrets of things not said, had I not gotten up late that night and driven to the hospital and taken some time to chat it up with her that night for over an hour, I would have had to live with not doing it for the rest of my life. Great story and tribute to your Dad!

For me, sometimes it seems so long ago, and sometimes it seems like just yesterday. There is not a day that goes by where I don't miss either of my folks, and wish I could just spend one more hour with them. This is especially true when someone else passes due to Pancreatic Cancer, like my Mom, and now Sally Ride, the first US female astronaut. Aug 3rd is 19 years....

#3060 Ryley

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Posted 01 August 2012 - 07:29 PM

I had a really hard time today flipping the page from July to August. Thanks, Ozee, for at least softening the blow a bit.

RIP, MSG.

#3061 mainsheetsister

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Posted 02 August 2012 - 01:13 AM

I had a really hard time today flipping the page from July to August. Thanks, Ozee, for at least softening the blow a bit.

RIP, MSG.


sigh...

#3062 Left Hook

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Posted 02 August 2012 - 03:59 AM

So this was an unfortunate week.

On Sunday a dear, dear friend lost her long battle to Cancer. Stirling Winder... a friend, crewmate and inspiration took a downturn when her Osteosarcoma flared up in late July. She was actively engaged in raising money for research through her charities in Bicycle Riding and Sailing - Sailing for Stirling... a badge that was proudly worn by the mini-maxi we raced on. She was a symbol for strength and love and the world is darker these days.


Sail on Stirling...

Posted Image

#3063 shaggybaxter

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Posted 02 August 2012 - 04:27 AM

Dear LH,
My condolences for your loss, I'm sorry to hear the news, but looking at the pic I am heartened that she had good mates that cared for her so much.
I'm going sailing on the weekend to raise a toast for Dad, will have to raise another one for Stirling too,
Hope you're doing OK,
SB



#3064 mainsheetsister

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Posted 02 August 2012 - 11:25 AM

So sorry, LH. Cancer is an evil thief, stealing yet another beautiful life.

Much love to you,

Chris

#3065 Ryley

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Posted 02 August 2012 - 01:18 PM

I'm sorry for your loss, LH - the Winders are some really fantastic people.

#3066 Bowgirl

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Posted 02 August 2012 - 01:23 PM

LH, I read your FB post about Sterling, which led me to her blog. She was a strong, determined spirit.
I'm sorry for your loss.

#3067 Left Hook

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Posted 02 August 2012 - 02:47 PM

I'm sorry for your loss, LH - the Winders are some really fantastic people.


Aren't they? She was really special and it was great having her race with us. Stronger than most grinders!!!

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#3068 Mario

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Posted 20 August 2012 - 06:23 PM

who's In, Larchmont Yacht Club Leukemia Cup Regatta!

http://wch.regatta.llsevent.org/

#3069 RockHead

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Posted 28 August 2012 - 05:15 PM

Posted Image
Four years ago today, the Pebble's final cancer treatment, #28 of 28 proton radiation treatments (all with anesthesia), after surgery to remove his brain tumor, 6 rounds of brutal chemotherapy, 3 with stem cell transplants.

Yesterday was his followup MRI, just got the result: All Clear! :D :D

One more year until the Oncologist can hopefully, officially use the "R" word.

Thank you Bowgirl, DCMJ, MSS, HCW, and all the others who were are so full of love and support, then and now. And of course all those who we have lost, especially our beloved Catherine.
Posted Image
The Pebble, MSG & the Rockette (L-R), March 31, 2012. We love you and miss you Catherine!

#3070 mainsheetsister

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Posted 28 August 2012 - 11:18 PM

Oh, Such Wonderful News! So happy for all of you!

That picture was taken on the last relatively "normal" day of Catherine's life. She messed her hair up on purpose, if I recall. If you look carefully, you can see the SA burgee on the IV pole behind her. It is both a sweet and sad memory.

Much love to you and your beautiful children, now and always.

Love, Chris

#3071 TimFordi550#87

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Posted 29 August 2012 - 12:36 AM

Fantastic news, RH, just plain excellent! If you think it's appropriate, tell the little rock his courage is an inspiration to us geezers!!!

#3072 Morgan Crew

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Posted 29 August 2012 - 03:46 AM

Hello RockHead;

Trust me, the fifth year will go by very fast and I hope you get to hear the words “in remission” a year from now.

Coincidentally, today, August 28, is the fifth year anniversary of my radical prostatectomy and next March 21 will be the fifth year anniversary of completing 8 weeks of radiation treatment. It was difficult at times. I know that others had more problems than what I experienced, so I am not complaining. My tests continue to be clear and I am counting on them staying that way.

Unfortunately, I am not alone. Three of my crewmates have been diagnosed with prostate cancer and been treated for it.

The good news is that tonight was the final race of our Tuesday night summer series. We came from behind, pushed harder and crossed the line first – this gave us a 1st place for the series.

Again, I hope you can celebrate next year as I did tonight.

Good on you and your son.

#3073 Don'tCallMeJudge

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Posted 29 August 2012 - 05:30 PM

Seriously Go The Pebble!
I'm honored to be taking a bit of Catherine with me in 4 weeks so she can be part of the Heaven Can Wait race. We'll scatter her ashes on Lake Maquarie over the weekend, with specific timing and details TBD.


Posted Image
Four years ago today, the Pebble's final cancer treatment, #28 of 28 proton radiation treatments (all with anesthesia), after surgery to remove his brain tumor, 6 rounds of brutal chemotherapy, 3 with stem cell transplants.

Yesterday was his followup MRI, just got the result: All Clear! :D :D

One more year until the Oncologist can hopefully, officially use the "R" word.

Thank you Bowgirl, DCMJ, MSS, HCW, and all the others who were are so full of love and support, then and now. And of course all those who we have lost, especially our beloved Catherine.
Posted Image
The Pebble, MSG & the Rockette (L-R), March 31, 2012. We love you and miss you Catherine!



#3074 riggert

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Posted 06 September 2012 - 07:51 AM

Hi Folks.
A little over three years ago I was diagnosed with AML, chemo over 7 months knocked me into remission, now I have just been diagnosed with early onset Parkinsons, it has taken awhile to get to this point due to the Docs wanting to check every other cause of the multiple symptoms.

My question is - Does anyone here know of anyone else that has developed Parkinsons after chemo?
I am curious to see if the chemo could be a contributing factor and the Docs all say no yet some info on the web indicates it could.

- At least with this one I get time to learn before having to make any major decisions, and little things will not cause life threatening complications with this disease.

All the Best

#3075 hobot

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Posted 07 September 2012 - 05:59 AM

My own storys way back on page 1, now I find out my brothers fighting stage 3 lung cancer! F*******K!!!
2 years older than me and it didn't help that he's been smoking cigs and pot since he was 14. His kids lost thier mom to cancer 10 years on now so this is devastating them. F*******K!!!!


fuck.


*sigh*

#3076 Bowgirl

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Posted 08 September 2012 - 07:46 PM

Oh Hobot - setting the kettle on. «f**k»

So many of us started that habit (those habits?) when we were 14. It's the generation. We were also the generation of Suntan Oil, not sunscreen.

Holding you all close in my thoughts and prayers.

#3077 Dale dug a hole

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Posted 09 September 2012 - 08:24 AM

My own storys way back on page 1, now I find out my brothers fighting stage 3 lung cancer! F*******K!!!
2 years older than me and it didn't help that he's been smoking cigs and pot since he was 14. His kids lost thier mom to cancer 10 years on now so this is devastating them. F*******K!!!!


fuck.


*sigh*

I understand the *sigh*

My sister has got cervical cancer, gone through treatment but it hasn't stopped it. Its in her lung and other areas now. So now she starts chemo this week. but basically she's fucked. She knows it, we know it, Its bloody hard to keep positive.

But what pisses me off the most is that I'm finding myself not wanting to ring and talk. It is so fucking hard, and I'm being a selfish cunt.

I did ring her today, and I know I've got to get over myself as I will regret it.

#3078 mainsheetsister

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Posted 09 September 2012 - 12:24 PM

riggert, hobot, Dale.....my heart is with you and your families. Cancer is an evil thief, stealing the precious lives of those that we love.

Dale, don't beat yourself up too much. It is only human nature to avoid something so heart-breaking, and of course it is hard to keep positive,

but you can do this.

#3079 Dixie

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Posted 12 September 2012 - 08:48 PM

We lost another sailing friend, Matt Carter, yesterday to cancer after 9 years of on and off again from the time he was diagnosed. I spent the evening with his family last night. I just hate that he had it in the first place. Too young, too much spirit. Two great kids, one who I've sailed with and will certainly sail again with, and an awesome saintly wife. Miss you Matt.

I expect there's a good regatta brewing among the newcomers in heaven.

Gosh that's hard to write, but I thought about this thread as I drove home this morning. There's so much great comfort here and it reaches out and holds your hand just when you need it. I'm sailing in the SF Leukemia Cup this year, and while Matt didn't have L, I will be sailing for him.

#3080 mainsheetsister

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Posted 12 September 2012 - 11:04 PM

So sorry, Dixie. Thinking of you and your friend Matt's family and friends.

#3081 Bowgirl

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Posted 13 September 2012 - 09:00 PM

We lost another sailing friend, Matt Carter, yesterday to cancer after 9 years of on and off again from the time he was diagnosed. I spent the evening with his family last night. I just hate that he had it in the first place. Too young, too much spirit. Two great kids, one who I've sailed with and will certainly sail again with, and an awesome saintly wife. Miss you Matt.

I expect there's a good regatta brewing among the newcomers in heaven.

Gosh that's hard to write, but I thought about this thread as I drove home this morning. There's so much great comfort here and it reaches out and holds your hand just when you need it. I'm sailing in the SF Leukemia Cup this year, and while Matt didn't have L, I will be sailing for him.


I like the way you will be remembering him.

Condolences to you and his family/friends.

#3082 Don'tCallMeJudge

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Posted 13 September 2012 - 09:47 PM

I'll be scattering some of Catherine's ashes this evening on Lake Minnetonka 10 minutes before the start of our Thursday evening race. If I can get a photo taken, I have her sister's OK to share it here.

I'm holding up OK at the moment, but I'm starting to feel like I'm gonna lose it...
I hope MSG forgives me if that happens.

#3083 mainsheetsister

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Posted 13 September 2012 - 09:55 PM

I'll be scattering some of Catherine's ashes this evening on Lake Minnetonka 10 minutes before the start of our Thursday evening race. If I can get a photo taken, I have her sister's OK to share it here.

I'm holding up OK at the moment, but I'm starting to feel like I'm gonna lose it...
I hope MSG forgives me if that happens.


She will. I still lose it every single day, just for a little while, and it has been five months.

Can't wait to see the pictures if they turn out.

Love, Chris

#3084 Don'tCallMeJudge

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Posted 14 September 2012 - 05:05 AM

Attached File  MSGashes2.jpg   93.21K   15 downloads

This was five minutes before the Warning Signal tonight. I was OK until right about the time that I realized that I didn't really make any good plans for even HOW to do this... but I had two people with me on the race committee signal boat, and gave them each a camera.

Attached File  MSGashes1.jpg   114.12K   13 downloads

What my RC helpers didn't realize or see (and I didn't mention) was that immediately after letting Catherine go, I was in the corner of the boat, and looking down at some of her ashes in the water and I got so light headed, that I almost lost my balance and fell head over heels into Lake Minnetonka. It might just have been some brief dizziness from my Multiple Sclerosis... but why am I thinking that C would probably have delighted in giving me a small push in the back, with a sly grin on her face?? ;)

After a minute of silence, it was time to make race announcements over the VHF, and I could barely hold it together. My voice was cracking. For all I know, I announced that the course was beer and pretzels?

Kestrel219 (Miss January in the 2012 SA Calendar specifically designed to be a fundraiser for Catherine) was sailing past with jackdaw, and they took some photos as well. If any of them come out, we'll try and post them as well.

A week from tonight I leave for Australia, and Catherine is coming with me there as well. She told me long before her own cancer announced itself that she wanted to go to the Heaven Can Wait 24 Hour race for cancer.

And so she shall.

#3085 mainsheetsister

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Posted 14 September 2012 - 09:59 AM

Thank you, with all of my heart.

Safe travels on the journey to Australia. Can't wait to hear all about it!

Much love, Chris

#3086 jackdaw

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Posted 14 September 2012 - 10:08 PM

Judge,

Glad we could be there. Was powerful, could hear the emotion in your voice. I got your email, here is the picture you talked about..

Posted Image


#3087 Don'tCallMeJudge

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Posted 15 September 2012 - 01:57 AM

Thanks so much to you and Kestrel for being there last night, and getting a pic from "off the boat"
I think your shot above was taken almost exactly when I got dizzy and was about to be "nudged" off the transom of the RC boat by C! ;)

I also appreciate that you two contributed so much to helping make the SA calendar a huge success as a benefit that directly supported Catherine this year. Truly!

#3088 Ozee Adventure

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Posted 15 September 2012 - 06:54 AM

The precious cargo (MSG travelling calender) is back in my hands - can someone who will be @ HCW & do the right thing PM me with their address please?

#3089 Ozee Adventure

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Posted 15 September 2012 - 08:55 PM

Calender travelling to New South Wales on Monday - we should have a little passport stamp too!

#3090 Don'tCallMeJudge

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Posted 16 September 2012 - 07:30 AM

Calender travelling to New South Wales on Monday - we should have a little passport stamp too!


Excellent news! Who should I be looking to for the handoff at the Heaven Can Wait race?
After the race, my plan is to bring it back to the States and get it to MSS, unless the plan changes. Again. ;)

#3091 Kestrel219

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Posted 18 September 2012 - 01:50 AM

Thanks so much to you and Kestrel for being there last night, and getting a pic from "off the boat"
I think your shot above was taken almost exactly when I got dizzy and was about to be "nudged" off the transom of the RC boat by C! ;)

I also appreciate that you two contributed so much to helping make the SA calendar a huge success as a benefit that directly supported Catherine this year. Truly!


Honored to be there!

Good to know C gets to go to Australia with you!

#3092 RockHead

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Posted 23 September 2012 - 05:35 AM

Bowgirl, DCMJ & some others here helped me through my roughest time with the Pebble. I just thought I'd let you know, while I was at the Painbox 24 Worlds this past week, I couldn't sleep Thursday night. So I picked up my tablet and visited the mythical front page. Found a mention of "Nick of Time" by Mary Kate Scandone. Downloaded the Kindle edition and read 2/3 of it that night, through the point of the Pebble's cancer diagnosis, with many tears. Finished most of the rest in the morning, through Nicks death from ALS. Many more tears.

Went out and beat 88 boats in the final race of the World's, with an 8th. Almost lost it a couple of times on the racecourse, I just knew that Nick was with me that day.

The book is a great read for everyone here, I highly recommend it. I miss Nick.

#3093 Dixie

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Posted 26 September 2012 - 04:47 PM

^Rockhead...congrats on a well done race for all the right reasons. Thank you.

From the front page today...As I mentioned earlier in this thread, I lost a friend to cancer a few weeks ago (9/11) and said I'd be sailing the Leukemia Cup for him. This developed into getting a ride on Dorade and the chance to sail on an all women crew, skippered by JJ Fetter. I've never sailed this race before and usually don't like to ask for donations, but this came together because of Matt and because of Catherine. I hope this makes a difference.


blood simple

Posted ImageGary will hopefully be remembered for giving hope to Leukemia and Lymphoma-afflicted patients with theLeukemia Cup – a regatta series that has raised millions of dollars to directly fund research that helps cancer patients live longer. There’s no cure yet, but it’s not a death sentence any longer, in part thanks to Gary and the tens of thousands of sailors and their friends that have thrown a few bucks at this horrible disease. SA’s NorCal SuperChick Paige Brooks tells us why she’s sailing it next month.

I've lost two friends to cancer this year. Both too young. Two other skippers whom I've sailed with for years have recently been diagnosed and treated for cancer. And early this year I held another friend's hand while she was infused with chemotherapy drugs.

Among my friends, these close encounters with cancer are just the tip of the iceberg.

It's not easy.

It's among us, and it's a part of our lives. This year, it was just too much for me not to do something. As I stood by Matt Carter's family the night he passed away two weeks ago, I said I would sail for him in the Leukemia Cup. He has been fighting his cancer since just after I met him in 2002. My sailing friend from South Florida, Catherine Connelly (mainsheetgirl –ed), had a shorter fight. She died at age 43 in early April after a diagnosis last fall.

All of us have had cancer of some sort touch our lives, take lives from us. Sometimes we can do something, we all wish we could to more. I certainly do.

On October 21st, I'm going to sail for the spirit of these two, and for the hope of funding continued and better research to treat and cure cancer.

I was given the opportunity to crew on a remarkable boat, with a remarkable team. Dorade is the yacht, a 52' boat conceived and built by a 21 year old Olin Stephens in 1929. In her day, she handily won races across oceans. Matt Brooks and Pam Levy have recently reinvigorated Dorade's spirit in a careful renovation of the boat and plan to race her again in those same races. She's already done the Newport - Bermuda - my mother and I wistfully watched her start from the shoreline - and they plan to do more including a Transpac (LA to Hawaii) and a Transat (NY to England). This month, the 83 year old Dorade is making her first appearance in San Francisco since the 1960s. For her racing re-debut here, she'll be sailing with an all women crew, skippered by JJ Fetter. I am honored to have been invited to join them.

And now for the ask. It takes more than just warm hugs and plates of lasagna to help support those with cancer and even more those who've not yet been diagnosed. I've set a high bar, but it's been years since I've done this sort of thing. I hope you'll support this lofty cause, with whatever amount will work for you. Be it $5 or $500, it will be welcome and appreciated.

Donate here, and thank you – from me, and everyone you might save.


#3094 mainsheetsister

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Posted 27 September 2012 - 10:08 AM

Sail well, Dixie. My thoughts are with you and with Matt's family and friends.

A minor point, but my sister was only 42 when she died.

#3095 Don'tCallMeJudge

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Posted 29 September 2012 - 10:54 AM

I shared some MSG with Lake Maquarie today after the start of the Heaven Can Wait race. It was blowing about 25+ knots and we were off Wangi at the time, and somehow methinks Catherine would have approved!

Attached File  CatherineHCW1.jpg   121.39K   10 downloads Attached File  CatherineHCW2.jpg   106.47K   13 downloads

She's also doing the full 24 hour race on board Young 'N Old.

The SA calendar arrived at RMYC-Toronto this evening, and we'll pass it around at the HCW awards tomorrow afternoon. All and all, it's a warm welcome to Australia for Catherine!

#3096 mainsheetsister

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Posted 29 September 2012 - 11:13 AM

I shared some MSG with Lake Maquarie today after the start of the Heaven Can Wait race. It was blowing about 25+ knots and we were off Wangi at the time, and somehow methinks Catherine would have approved!

Attached File  CatherineHCW1.jpg   121.39K   10 downloads Attached File  CatherineHCW2.jpg   106.47K   13 downloads

She's also doing the full 24 hour race on board Young 'N Old.

The SA calendar arrived at RMYC-Toronto this evening, and we'll pass it around at the HCW awards tomorrow afternoon. All and all, it's a warm welcome to Australia for Catherine!


Wow, looks like it all came together beautifully Thank you!

Amazing! Just amazing!

Love, Chris

#3097 Don'tCallMeJudge

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Posted 02 October 2012 - 02:12 AM

This is already posted in the calendar thread in GA, so sorry to be a bit off topic, but want to remind those in Sydney:
The traveling calendar will be at Lord Nelson's in Sydney tonight, Oct. 2nd. I'm going for dinner with BowGoddess at 6:30.
PM me ASAP if you can stop by. Thursday it returns to the US, and thence back to Catherine's sister.

#3098 V-15_Frenchie

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Posted 07 November 2012 - 09:33 PM

I found out last September that Uncle Frenchie has Stage IV ascending colon cancer. He's in his mid-70s, "Silent Generation" type guy -- never said anything, never complained, would never show pain, so he found out about it really late. The "clue" was that he had lost a bunch of weight and lost his appetite. Never really felt pain.

Given that he lives ~4000 mi away, I dropped by to visit while I was there in December, and he seemed to be doing well and seemed to be tolerating the chemo fairly well. He had lost a significant amount of weight (~20kg or so), but he was OK. I dropped by again last time I was there in late May, and he had lost more weight, wasn't eating much and was in pain. He and my aunt were packing up their house, giving / throwing away a bunch of their belongings, to move closer to my cousin halfway across the country. They weren't particularly keen to have visitors, but my wife and I went anyway. We stayed for an hour and a half, just for tea and some cookies. It didn't look like he could handle much more. I gave him a big hug on my way out the door, and I felt like I was hugging a bunch of bones instead of the strong guy I used to know. I lost it in the car as my wife & I drove off to see some of her family, enough so that she asked if I didn't want to stop for a while. It took a while to get it back together.

Mom Frenchie (aunt's sister) went to visit the other day, and it's starting to sound like May was the last opportunity I'll have to see him alive. He had just had his latest round of chemo, and had a major onset of pain and was rushed to the hospital. He was doing as best as could be expected for a few days, but just today nurses have apparently closed off most of the access to his hospital room and his immune system has crashed - no more WBCs, no more platelets. For a guy who never complained about pain, he's on heavy doses of morphine right now, and it sounds like that's barely helping. He's telling everyone that he's looking forward to getting out of the hospital by this weekend and is looking forward to the next round of chemo in a week or so, but it sounds like the end is near. He's lucid sometimes, but less and less so. I don't think he realizes what's happening. Or he doesn't want to admit it to himself or to others. But it seems like the end is near. This sucks. We're a really small family, so aside from my father, he was the only other male presence in my life. (And on the father front, he's been dealing with prostate cancer, doing "watchful waiting" for the last ~12 months....). This sucks. And I'm 4000mi away as this is all happening.

It's dusty in here.


Well, he put up a good fight, but Uncle Frenchie passed away in his sleep on Saturday night, about a year after receiving the diagnosis of colon cancer. The overseas Frenchie family found out yesterday, the day he was buried... Goodbye, Michel. I'll miss you, but I'll rest easier tonight knowing you're no longer in pain. The only pain remaining is in the heavy hearts of those you've left behind. Fair winds and following seas.

#3099 mainsheetsister

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Posted 07 November 2012 - 09:50 PM


I found out last September that Uncle Frenchie has Stage IV ascending colon cancer. He's in his mid-70s, "Silent Generation" type guy -- never said anything, never complained, would never show pain, so he found out about it really late. The "clue" was that he had lost a bunch of weight and lost his appetite. Never really felt pain.

Given that he lives ~4000 mi away, I dropped by to visit while I was there in December, and he seemed to be doing well and seemed to be tolerating the chemo fairly well. He had lost a significant amount of weight (~20kg or so), but he was OK. I dropped by again last time I was there in late May, and he had lost more weight, wasn't eating much and was in pain. He and my aunt were packing up their house, giving / throwing away a bunch of their belongings, to move closer to my cousin halfway across the country. They weren't particularly keen to have visitors, but my wife and I went anyway. We stayed for an hour and a half, just for tea and some cookies. It didn't look like he could handle much more. I gave him a big hug on my way out the door, and I felt like I was hugging a bunch of bones instead of the strong guy I used to know. I lost it in the car as my wife & I drove off to see some of her family, enough so that she asked if I didn't want to stop for a while. It took a while to get it back together.

Mom Frenchie (aunt's sister) went to visit the other day, and it's starting to sound like May was the last opportunity I'll have to see him alive. He had just had his latest round of chemo, and had a major onset of pain and was rushed to the hospital. He was doing as best as could be expected for a few days, but just today nurses have apparently closed off most of the access to his hospital room and his immune system has crashed - no more WBCs, no more platelets. For a guy who never complained about pain, he's on heavy doses of morphine right now, and it sounds like that's barely helping. He's telling everyone that he's looking forward to getting out of the hospital by this weekend and is looking forward to the next round of chemo in a week or so, but it sounds like the end is near. He's lucid sometimes, but less and less so. I don't think he realizes what's happening. Or he doesn't want to admit it to himself or to others. But it seems like the end is near. This sucks. We're a really small family, so aside from my father, he was the only other male presence in my life. (And on the father front, he's been dealing with prostate cancer, doing "watchful waiting" for the last ~12 months....). This sucks. And I'm 4000mi away as this is all happening.

It's dusty in here.


Well, he put up a good fight, but Uncle Frenchie passed away in his sleep on Saturday night, about a year after receiving the diagnosis of colon cancer. The overseas Frenchie family found out yesterday, the day he was buried... Goodbye, Michel. I'll miss you, but I'll rest easier tonight knowing you're no longer in pain. The only pain remaining is in the heavy hearts of those you've left behind. Fair winds and following seas.


So sorry. Thinking of you and your family.

#3100 Bowgirl

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Posted 08 November 2012 - 10:45 AM

Frenchie family, I'm so sorry you've had Michel stolen from you by cancer. It's always hard to lose a loved one, and it is so much more cruel when the thief is cancer.




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