Pertinacious Tom
Importunate Member
- Thread starter
- #201
When does stupid cross the line and become evil?
A look in the rear-view mirror, courtesy of Team Alexis on FB:
509 days seizure-free.
The best legal drugs bought her hours, not years.
A look in the rear-view mirror, courtesy of Team Alexis on FB:
Team Alexis
6 hrs ·
As I am sitting here alone watching Alexis sleep I wrote this. I hope legislators get a chance to see it. Feel free to share:
Tonight I find myself sitting at the foot of the bed watching Alexis sleep. She is sleeping peacefully having just completed 509 consecutive days seizure free thanks to THC and CBD products but still I sit here worrying. You see, this week Liza and Avery are out of town picking up Alexis’s new service puppy and we are once again a military family torn apart by the drug war. Alexis simply can’t ride to Texas due to state laws.
Suddenly, I am back to our life in Texas. The countless sleepless nights flood through my mind. The horror of waiting for the seizure monster’s next attack still causes goosebumps even tonight. As a man of faith I know that God has blessed us all with this plant meant to save lives and he is showing it through Alexis. As a disabled veteran, I know I have to project fearlessness to Alexis while I am the only one here to care for her should the seizure monster resume his attacks. However, the scientist in me knows the seizure monster is still here in this room. Cannabis has stopped his relentless attacks on Alexis’s little body but the hunt (the disease) continues. The scientist in me also knows that neither prayer nor cannabis cures epilepsy. The father in me knows that Alexis’s facial ‘ticks’ whose return I have recently noted are the exact same ones she used to have when the monster could reach her. I can’t logically discount the significance of their return at the exact time that her doctors are saying it may be time to up her THC dose again. After all, she has some of the world’s best doctors monitoring the blood she donates to Children’s Hospital Denver Colorado every month.
However, as she grows, it is obvious something slight is changing. We adjust her dose every week for weight changes, but early on we were told by her doctors that as she approached puberty her THC demands would likely go up and perhaps go up significantly. Luckily, here in Colorado, THC access is not a problem but for CBD-Only states where the legislators serve double duty as doctors, we would be out of luck.
Tonight I sit here and for the first time in months I worry. I know it is mathematically probable that Alexis will have a serious seizure again someday. We have a whole-family plan to deal with that. However, tonight that plan can’t be executed because Alexis’s THC medicine isn’t allowed in the states along the path to Texas. Tonight Alexis’s support group has once again been splintered by Texas’s (and other states) choice of political expedience over life.
Tonight, Alexis is once again in more danger because of CBD-Only legislation and she doesn’t even live in a state that has it.
Texas Governor Greg Abott are you listening sir? Do you care?
Respectfully,
Dean M. Bortell
Disabled American Veteran
509 days seizure-free.
The best legal drugs bought her hours, not years.
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